PRADER-WILLI SYNDROME(PWS) - Hot News

Prader Willi syndrome is a rare hereditary disease suffering. Prader-Willi syndrome is a congenital disease.Do not stop eating even when full. They have muscle weakness, non-standard behavior, is obsessed with a speaking disorder. In Uruguay there are 40 people with Prader-Willi syndrome, a rare form that is little known.



The mission of the Utah Prader-Willi syndrome, the relationship is to provide families and professionals with a network of support, resources and to promote awareness of state and travel funds will directly benefit Utahn with PWS. In worms, facilitate reconciliation opportunities to put together a pro-active people who can pick talent, resources, ingenuity and vision to produce more opportunities, increase the quality of life and create a brighter future for people with PWS. "

The problem with a rare disease to fight twice, because the problems of a chronic illness adds is little to support the patient and his family. Maria Ines Fonseca is all about: his daughter was diagnosed with Prader Wilier syndrome shortly after birth, and look into the consciousness of natural cases of Uruguay to increase. She remembered that her daughter was "low muscle tone was so sweet, did not answer."

Parents and care provider of a person with Prader-Willi syndrome knowledge some of the highest levels of stress. Through a child's life that will require assistance from a large number of professionals.

source:chafid.com